Is it feasible to share research findings with HIV-infected participants enrolled in observational research in rural sub-Saharan African? Anna Baylor and colleagues orally disseminated their findings to 477 research participants during a meeting modelled on a traditional wedding event. The information was enthusiastically received by participants. The meeting was a rewarding experience for the research team and identified new areas for investigation, say the authors.
Funding: The UARTO Study is funded by U.S. National Institutes of Health (NIH) RO-1 MH-54907 and is a collaboration between the Harvard University Center for AIDS Research P30 AI060354 and UCSF Center for AIDS Research NIAID P30 AI027763. Dr. Bangsberg receives support from NIH K24 MH-87227. Dr. Tsai receives support from NIH K23 MH-096620. Dr. Haberer receives support from NIH K23 MH-087228K-24 MH87227. The dissemination conference was funded by the Mark and Lisa Schwartz Family Foundation and the Sullivan Family Foundation. The MUST Research Collaboration receives additional support from the Bacca and Paiko Foundations. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.
Competing Interests: DB is a member of the Editorial Board of PLOS Medicine. All other authors have declared that no competing interests exist.
Citation: Baylor A, Muzoora C, Bwana M, Kembabazi A, Haberer JE, et al. (2013) Dissemination of Research Findings to Research Participants Living with HIV in Rural Uganda: Challenges and Rewards. PLoS Med 10(3): e1001397. doi:10.1371/journal.pmed.1001397
IN YOUR COVERAGE PLEASE USE THIS URL TO PROVIDE ACCESS TO THE FREELY AVAILABLE PAPER:
http://www.plosmedicine.org/article/info%3Adoi%2F10.1371%2Fjournal.pmed.1001397
Contact:
David Bangsberg
Massachusetts General Hospital Center for Global Health
Boston, Massachusetts
United States of America
dbangsberg@partners.org
Journal
PLoS Medicine