“About me” care card tool can improve care planning and cognitive health management

Original Research

Background and Goal: Existing tools for cognitive impairment focus primarily on clinical diagnosis but do not support discussions that address patients’ personal fears, goals, and social needs.

Study Approach: Researchers conducted a feasibility study using a community and user-centered design approach to develop and test the “About Me” Care Card, a tool developed based on shared decision-making principles. An environmental scan identified gaps in existing cognitive care tools, and a global steering committee made up of health care professionals, patient advocacy groups, caregivers/family members, and individuals with dementia provided feedback.  

Main Results Fourteen clinicians consisting of 7 clinician types across 7 institutions piloted the card during in-person visits or by telephone. Observations showed the card (1) allowed time to elicit what matters most to patients, (2) created space for personalized care conversations, (3) opened an examination of social care needs, and (4) moderated emotional relationships between families and individuals. Findings from 44 completed post-use surveys showed that most patients found the card beneficial, with 65% recommending it for those over age 65. However, while 41% found it easy to use, some patients with advanced cognitive challenges required assistance and only 32% felt it helped in creating a concrete plan to address their priorities.

Why It Matters: Findings from this study suggest that integrating tools like the “About Me” Care Card into primary care workflows could help clinicians identify patient concerns earlier. 

Feasibility and Acceptability of the “About Me” Care Card as a Tool for Engaging Older Adults in Conversations About Cognitive Impairment

Stuart W. Grande, PhD, MPA, et al

University of Minnesota School of Public Health, Minneapolis, Minnesota

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