Patient-driven research (IMAGE)
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Tracy VanHoutan, left, became an advocate for research on Batten disease after his son Noah, fourth from left, was diagnosed. Noah and his younger sister Laine, third from left, died from Batten disease. VanHoutan’s efforts have resulted in valuable collaborations between families and WashU Medicine researchers, which have driven advances into understanding and potentially treating the devastating rare disease.
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Amy Goray Photography
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